Speech delay.......what speech delay?

As I mentioned in my last entry, we were a little worried about Mallory's speech.  During Christmas break I realized that she hadn't gained one more word in her vocabulary for about a month so I decided it was time to look into it.  I called my pediatrician and she suggested I start with an evaluation at the CDSA in Winston-Salem.  We very quickly met with our service provider and got an evaluation scheduled for the middle of January.  A child psychologist came and spent about 2 hours with Mallory and I at the house.  Of course, she loved the individual attention!  Their assessment consisted of 5 different areas of development and in all 5 she had typical development even in communication.  However, that score consisted of both receptive and expressive so she did an additional assessment that broke up the 2 areas.  Based on this test, Mallory did have a 45% delay in expressive language (scored at 11 months and she was 20 months at the time) so we qualified for the services of the agency.  The next week we created our Family Service Plan where we decided to continue with a speech evaluation.  Due to the stomach flu and other various illnesses our scheduled evaluation was delayed (no pun intended!) ;) so we didn't get in until mid February.  About a week before the appointment I just knew she would not qualify.  Her speech had exploded- she copied everything we said and had probably gained about 20 words in a month.  Well, I was right.  She scored at almost exactly her chronological age.  And about 3 weeks later we continue to hear more and more.  It's so exciting to hear and I smile every time she says something to me.   This was the ONLY area we have ever worried about and here we are almost 10 months past surgery and she is right where we should be.
What a miracle!

Good news is.....

I was just sitting here re-reading old posts.  Sometimes I just have to do that.  Its hard to believe that its been 7 months.  But, in some ways it seems forever ago.  Does that make sense?  Good news is.....it's behind us.

Last week I received an email from someone who came across my blog, G.  She was waiting to hear back from a plastic surgeon in NC about the results of her daughter's catscan.  She was inquiring about where we had the surgery and asking for any insight I had.  I was happy, AM happy, to help anyone who may have just started their own cranio journey.  The good news is....she didn't need my help!  The surgeon ruled out cranio after seeing the scans.  Congrats G!!

In my last post, I mentioned Mallory's delay in her expressive language.  At her appointment in November, the pediatrician and I agreed to wait 2-3 months to see if her rate in learning new words increased at all.  Good news is.....she learned a new word this week.  Bad news is......it's NO.

Last bit of good news is.....one more week left of Christmas vacation!!

Happy New Year's everyone!

All is good!

Our last visit with the surgeon went well- extremely well.  Mallory's noggin is perfect.  Well, according the doctor.  You can still see the "screws" and the lumps and bumps are still there but according to her that just takes time.  The way she explained it is that Mallory's body is fighting this foreign substance so there is some swelling in the area of the surgery.  As the screws begin to dissolve, the swelling will go down.   The only worry that we (parents and doctors) have at this time is her delay in talking.  In the last 2 weeks I have noticed a few words so I am hopeful that she just needs some extra time.  We will be looking into this soon.
A few people have told me recently that they continue to keep up with my blog.
So, thank you to those people.  And to anyone else that has come across this blog.  I appreciate you keeping up with our sweet Mal and her journey.

Surgery- what surgery?

We are more than 4 months post-surgery and it seems like so long ago.  It's strange- something that was such a MAJOR part of our life only half a year ago is now something I barely think about.  Sure, I have the little screws sticking out of her head (hhhmmm....Frankenstein for Halloween?) or the remaining scabs on the incision to remind me but with all the action of our daily life those things go unnoticed.
The first few days after getting rid of the helmet were interesting ones.  Mallory didn't realize that when you had a tantrum on the floor and threw your body down, it actually hurt to have your head hit the hardwoods.  Only took her twice and now she does a slo-mo tantrum until she is completely on the floor and lets loose.  Within 3 days it was life as usual.
We have another follow-up appointment in 2 weeks- I am positive we will get good news.

3 month surgiversary!!

I remember thinking how long 3 months sounded and here we are!  Technically, we could take the helmet off today but we decided to leave it for one more day.  This is Mallory's first week back at daycare so I am sure she is all over the place.  We will take the helmet off tomorrow night- yay!  I will report back to let everyone know how it is going.  I am sure it will be an interesting weekend.  She is so used to having a helmet that she throws her head around and walks into things and has no knowledge of the consequences.  She will find out soon enough.......

2 months out

Yesterday was the 2 month anniversary of the surgery.  That means 2/3 of the way through the helmet wearing.  Mallory is doing extremely well.  Its like nothing happened.  The only clues are the large pink puffy helmet on her head and the zig-zag incision through the head.  Well, okay, those are pretty big clues but looking at her daily life you would never know the trauma she went through only 2 months ago.  Today we had another follow-up appointment.  Her surgeon said she is healing perfectly both inside and outside.  The bones should be set very soon so in one month time the helmet is gone!!  YAY!!  Really, the helmet hasn't been such a big deal.  She sweats more but it has helped while she learned to walk.  I know she will be excited to get rid of it.  When I take it off for baths she just sits there and rubs her head.  Too cute!  She is growing up so quickly.  She is now walking, attempting to run, and has started talking.  Words include: dog, dada, thank you, and bird.    She also understands so much of what we ask her to do.   Sniff- sniff- so sad knowing she is my last one.  Here is a picture of our family portraits taken a week ago.  Can't even see the incision from the front!

  Her next appointment is 3 months from now so hopefully we will have nothing new to report for a while!!  Thanks for reading.  Enjoy the rest of your summer.  We hope to do the same.

It's been a while....

Hello everyone!!  We had our post-op appointment 9 days later and the doctor was very happy with how things were healing.  She commented on the swelling but the incision looked great.  We tried on the smaller helmet and her head was still a bit swollen.  We also talked about our little Houdini- she is able to pull out the mesh covering while the helmet is still on!!
Her recovery has been amazing!  She is moving around like nothing happened.  At this point, the swelling has gone done and the incision looks good.  We are now in the smaller helmet with nothing underneath.
I remember reading that one of the hardest things about the surgery is seeing a new head shape and seeing how different your child looks.  I can't lie- it has been strange.  Her face is just not hers....but it is gorgeous- just the same as it was before.  Damn- I love that girl.  She has been through so much but just keeps going like nothing has happened.  She doesn't even try to take off the helmet!!   Only about 2 more months- yay!!